Category: Ethics
Articles about end-of-life ethical issues including ethical dilemmas
Demystifying Death: Why Hiding the Dying Process from Children Harms Society’s Future
Shielding children from death deprives them of understanding this natural part of life, leading to emotional and psychological consequences. This article explores why exposing children to the dying process is essential for their development and highlights the role of hospice care in supporting families during this time.
Oral Ketamine in Palliative Care: A Promising Approach for Emotional and Psychological Distress
Discover how oral ketamine is emerging as a game-changer in palliative care, offering rapid relief for severe depression, anxiety, and emotional distress. This comprehensive guide explores its potential benefits, administration methods, and important considerations for patients and healthcare providers.
Empowering Caregivers: Effective Communication with Healthcare Providers
Discover how to use the CUS tool and Caring Feedback Model to advocate for your loved one's health. This guide empowers caregivers to communicate effectively with healthcare providers, ensuring their concerns are heard and addressed.
Understanding Palliative Sedation: A Comprehensive Guide for Hospice Care
This guide covers the essentials of palliative sedation for hospice patients, including ethical dilemmas, timing, recommended medications, and monitoring effectiveness, ensuring comfort during the end-of-life journey.
How to Communicate Effectively with Healthcare Professionals as a Family Member of a Patient with a Terminal Illness
Learn how to communicate effectively with healthcare professionals when caring for a loved one with a terminal illness. Improve communication, advocacy, and coping skills to ensure your loved one receives the best care possible.
Navigating the Complex World of Dementia and Seizures
This article delves into the intricate relationship between dementia and seizures, offering insights on identification, safety protocols, and advocacy for caregivers.
The Rising Significance of End-of-Life Doulas in Hospice Care
This article delves into the growing importance of End-of-Life Doulas in hospice care. It provides insights into their role, their support to patients and families, and their impact on the quality of end-of-life care.
The Dark Side of Hospice at a Facility
Hospice care in facilities can face challenges due to facility policies, staffing issues, and lack of coordination with hospice providers. This article sheds light on the struggles patients, families, and hospice nurses face in ensuring timely, appropriate care.
Ensuring Quality Care: The Vital Role of Regular Care Plan Meetings
Uncover the importance of regular care plan meetings at healthcare facilities. This guide details participants, goals, benefits, and risks of non-participation.
Hospice Care: A Purist vs. Non-Purist Approach
Dive into the contrasting philosophies of purist and non-purist hospice nurses and doctors. Understand how their views on medication and patient care differ, shaping the terminal phase of a patient’s journey. This article highlights the delicate balance between medical intervention and quality of life in hospice care.
The Final Journey: Understanding Why the Actively Dying May Linger
Explore the profound journey of the actively dying. This article unravels the reasons behind their lingering, examining medical interventions and the emotional need for closure. Gain insight into this delicate phase of life."
Choosing Your Hospice Care: Understanding Patient and Family Rights
An article that guides families through understanding and exercising their rights to choose the best hospice care for their loved ones, ensuring their final chapter is written with compassion and respect.
Doctors Ignoring Family Concerns in Dementia Care
Welcome to our discussion on a topic close to many hearts: the care of our loved ones with dementia. When a family member is diagnosed with dementia, it feels like a part of them slowly fades away. But as they lose parts of themselves, your role in their life becomes even more crucial. This article isn’t just words on a page; it’s a beacon of hope and understanding, shining a light on why your voice, as a family member, is vital in the care of your loved one.
Hospice Access for Undocumented Immigrants
Welcome to our guide on hospice care for undocumented immigrants. This article is crafted with the utmost empathy to support family members and caregivers as they navigate the complexities of end-of-life care. Our goal is to provide a clear understanding of hospice services and the unique challenges faced by undocumented immigrants during these tender moments.
Advocating for your loved one on Hospice Services
When someone you love is extremely sick and needs hospice care, you may feel scared, sad, or angry. You may not know what to do or how to help them. You are not alone. Many people go through this challenging time.
As a hospice nurse, I have met many families who have loved ones in hospice. Some of them are continually active and involved in their care. They ask questions, make decisions, and speak up for their needs. Others are more passive and trusting. They let the doctors, nurses, and staff do whatever they think is best. They don’t say much or ask for anything.
Who do you think gets better care for their loved ones? The active ones or the passive ones?
Optimizing Hospice Respite Care: A Comprehensive Guide for Families
Caring for a loved one who has a terminal illness can be extremely rewarding but also particularly challenging. You may feel exhausted, overwhelmed, or isolated by the demands of caregiving. You may also feel guilty or anxious about taking a break from your loved one. But you deserve time to rest, recharge, and care for yourself. That is why hospice respite care can be a great option for you and your loved one.
Hospice respite care is a service that allows you to temporarily place your loved one in a facility, such as a hospital, nursing home, or hospice house, where they can receive professional care and support. You can use this time to do whatever you need or want, such as sleeping, working, running errands, visiting friends, or enjoying a hobby. Respite care can last up to five days at a time.
Supporting a Loved One’s Decision to Stop Eating and Drinking Voluntarily
Explore how to support a loved one's decision to stop eating voluntarily and drinking (VSED) in hospice care. Learn about the ethical, emotional, and practical aspects of VSED, including its impact on patients and families, and how to provide compassionate care during this challenging end-of-life journey.
To Wake or Not to Wake: A Dilemma for Caregivers of Dementia Patients in the Final Stage
Caregivers of dementia patients in the final stage face a challenging dilemma: whether to wake their loved ones or let them sleep. This article explores the pros and cons of each approach, offering guidance on making this difficult decision while prioritizing comfort and dignity in end-of-life care.
Statins Increase the Risk of Dementia or Worsening Dementia
Pharmaceutical advertisements often highlight the benefits of a particular drug, including its ability to reduce the risk of various health conditions. However, the actual risk reduction these drugs provide may differ from what is portrayed in the advertisements. It is the opinion of the author that if cardiologists and other providers told their patients the absolute risk reduction of statins is 0.8% for all-cause mortality, 1.3% for myocardial infarction and 0.4% for stroke and the side effects of going on a statin include dementia, worsening dementia, confusion, muscle problems, such as aches, pains, weakness, muscle breakdown, falls, nausea, constipation, diarrhea, and increase the risk of type 2 diabetes, would you or anyone else ever agree to take a statin?
Failure to Decline in Hospice – The Good and The Ugly
If your loved one is facing a discharge from hospice due to failure to decline, it's crucial to comprehend the situation clearly. This discharge indicates that the healthcare team believes your loved one's condition has stabilized and no longer requires hospice care. While this might be a positive sign, it's important to weigh the pros and cons before making decisions. Let's delve into both the positive and negative aspects of this situation to help you navigate it effectively.
Advocating for Your Terminally Ill Loved One in a Facility
As a family member of a terminally ill loved one receiving care in a facility, you play a vital role in ensuring they receive the best possible care and support during their journey towards a good death. Advocating for your loved one involves understanding their needs, communicating effectively with the facility staff, and staying informed about their care plan. This article aims to guide you on being an effective advocate, asking the right questions, and ensuring your loved one's comfort and well-being.
Eye-Opening Lessons on Trusting Nursing Facilities: Advocating for Comfort in End-of-Life Care
As an experienced hospice visiting registered nurse, today offered me profound insights from two interconnected perspectives. The first highlights the blind trust we often place in facility nurses and doctors when caring for our loved ones. The second involves the challenges I encountered while advocating for proper end-of-life care for a patient with Alzheimer's.
Two days…. until…
There is a spiritual connection in hospice, dealing with death and dying forty-plus hours per week. We who are in the field see it often, but there are times when we hear it firmly from the patients and families whom we serve. Let me share the most recent event on Memorial Day, 5/29/2023, week.
Ethical Dilemmas in Hospice
As a hospice RN case manager, I have seen many ethical dilemmas arise in end-of-life situations. Hospice care is unique because it focuses on providing comfort care to patients no longer seeking curative treatment for their illnesses. As a result, the ethical concerns in hospice care differ from those in other healthcare settings. This article will explore some ethical dilemmas that can arise in hospice care and how they can be addressed.
Before I review several case studies gathered from the sources in the resource section below, please allow me to share a current one of mine that is ongoing as this article is being published.