Category: Advocacy

Advocacy issues in healthcare especially in the field of hospice

Doctors Ignoring Family Concerns in Dementia Care

Welcome to our discussion on a topic close to many hearts: the care of our loved ones with dementia. When a family member is diagnosed with dementia, it feels like a part of them slowly fades away. But as they lose parts of themselves, your role in their life becomes even more crucial. This article isn’t just words on a page; it’s a beacon of hope and understanding, shining a light on why your voice, as a family member, is vital in the care of your loved one.
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Hospice Access for Undocumented Immigrants

Welcome to our guide on hospice care for undocumented immigrants. This article is crafted with the utmost empathy to support family members and caregivers as they navigate the complexities of end-of-life care. Our goal is to provide a clear understanding of hospice services and the unique challenges faced by undocumented immigrants during these tender moments.
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Advocating for your loved one on Hospice Services

Take Charge
When someone you love is extremely sick and needs hospice care, you may feel scared, sad, or angry. You may not know what to do or how to help them. You are not alone. Many people go through this challenging time. As a hospice nurse, I have met many families who have loved ones in hospice. Some of them are continually active and involved in their care. They ask questions, make decisions, and speak up for their needs. Others are more passive and trusting. They let the doctors, nurses, and staff do whatever they think is best. They don’t say much or ask for anything. Who do you think gets better care for their loved ones? The active ones or the passive ones?
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Optimizing Hospice Respite Care: A Comprehensive Guide for Families

hospice four levels of care
Caring for a loved one who has a terminal illness can be extremely rewarding, but also particularly challenging. You may feel exhausted, overwhelmed, or isolated by the demands of caregiving. You may also feel guilty or anxious about taking a break from your loved one. But you deserve some time to rest, recharge, and take care of yourself. That is why hospice respite care can be a great option for you and your loved one. Hospice respite care is a service that allows you to temporarily place your loved one in a facility, such as a hospital, nursing home, or hospice house, where they can receive professional care and support. You can use this time to do whatever you need or want to do, such as sleeping, working, running errands, visiting friends, or enjoying a hobby. Respite care can last up to five days at a time.
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Advocating for Your Terminally Ill Loved One in a Facility

distressed woman
As a family member of a terminally ill loved one receiving care in a facility, you play a vital role in ensuring they receive the best possible care and support during their journey towards a good death. Advocating for your loved one involves understanding their needs, communicating effectively with the facility staff, and staying informed about their care plan. This article aims to provide you with guidance on how to be an effective advocate, asking the right questions, and ensuring your loved one's comfort and well-being.
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Eye-Opening Lessons on Trusting Nursing Facilities: Advocating for Comfort in End-of-Life Care

Empty Hospital Bed At A Nursing Facility
As an experienced hospice visiting registered nurse, today offered me profound insights from two interconnected perspectives. The first highlights the blind trust we often place in facility nurses and doctors when caring for our loved ones. The second involves the challenges I encountered while advocating for proper end-of-life care for a patient with Alzheimer's.
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