Tag: Comfort Care

Articles about comfort care for the terminally ill patient seeing a good death.

Understanding COPD: A Guide for Families

As an experienced hospice nurse with years of experience, I understand that coping with a loved one's diagnosis of Chronic Obstructive Pulmonary Disease (COPD) can be overwhelming and challenging. In this article, we'll explore what to expect over the course of the disease, the changes you might notice in your loved one, and how to provide the best care and support from the onset until the end.

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How to Use the Pain Assessment in Advanced Dementia Scale (PAINAD) to Determine Discomfort in Your Loved One with Dementia

Paidad Scale To Assess For Pain Observationally

If you have a loved one with dementia, it can be difficult to know if they are in pain or discomfort. The Pain Assessment in Advanced Dementia Scale (PAINAD) is a tool that can help you determine if your loved one is uncomfortable. The Pain Assessment in Advanced Dementia Scale (PAINAD) is different from other pain assessment tools for people with dementia in several ways:

Read MoreHow to Use the Pain Assessment in Advanced Dementia Scale (PAINAD) to Determine Discomfort in Your Loved One with Dementia

Understanding the Decline of Terminally Ill Loved Ones: Medications vs. Disease Processes

Illness Trajectories And Palliative Care

When a loved one is terminally ill, it can be a perplexing and emotional journey. Understanding the root cause of their declining health becomes paramount. It's a complex puzzle where family members often grapple with questions: Are the symptoms a result of medications prescribed, or are they intrinsic to the terminal disease? This article delves into the critical distinctions between medication side effects and the natural progression of terminal illnesses, offering insights to empower families and caregivers in making informed decisions about their loved one's care.

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Dispelling Myths About Hospice Care

Hospice care is often misunderstood and shrouded in myths that can prevent individuals and families from accessing the compassionate support they need during a challenging time. This article will address common misconceptions about hospice care and provide you with the facts. We aim to empower you with accurate information to make informed decisions when considering hospice for yourself or a loved one.

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Unmanaged Pain in Dementia Patients

Dementia is a condition that affects millions of people worldwide, and it can cause a range of symptoms, including pain and discomfort. Unfortunately, pain is often under-detected and undertreated in people with dementia, leading to significant suffering and a reduced quality of life. In this article, we will explore the prevalence of pain among dementia patients, the impact of unmanaged pain on their quality of life, behavioral changes that may indicate pain, and the use of the PAINAD pain scale as a tool for assessing and managing pain in dementia patients.

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Caring for a Loved One with a History of Diverticulitis

Caring for a loved one with a history of diverticulitis requires a combination of preventive measures, early detection of warning signs, and understanding the common signs and symptoms of this condition. Your role as a caregiver is crucial in providing support and assistance to ensure their well-being. In this comprehensive guide, we will explore essential aspects of caring for someone with diverticulitis, including prevention, early warning signs, and treatment options.

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Understanding Discomfort: Distinguishing it from Pain While Caring for Your Terminally Ill Loved One

An Elderly Woman Who Is Uncomfortable

Caring for a terminally ill loved one is a profound and challenging journey that requires compassion, understanding, and a willingness to alleviate any discomfort they may experience. In this guide, we will explore the concept of discomfort, its distinction from pain, and the importance of recognizing and addressing discomfort in addition to pain. You'll be better equipped to provide holistic care that enhances your loved one's quality of life during this sensitive time.

Throughout your loved one's illness, you might find yourself thinking that they don't require "pain medication" because they don't seem to be in pain. They might even respond with a direct "no" when asked about their pain. However, are you aware that most types of pain medication can alleviate discomfort? Did you also know that your loved one could be feeling uncomfortable without necessarily being in severe pain? Nonetheless, it's important to recognize that their discomfort requires the same treatment as if they were in pain.

Read MoreUnderstanding Discomfort: Distinguishing it from Pain While Caring for Your Terminally Ill Loved One

Understanding the Role of IV Fluids at the End of Life

Explore the delicate balance of IV fluid use at life’s end. This article discusses the hospice approach, potential risks, and prioritizing comfort over invasive measures. A must-read for families facing tough decisions in palliative care.

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Educating Facility Staff on What Matters for Terminally Ill Patients

Educating nursing home staff on hospice care priorities like shifting focus from vital signs to comfort, managing symptoms like pain/breathlessness, providing psychosocial support, end-of-life planning, and bereavement care is crucial. Hospice emphasizes quality of life over curative treatments. Effective symptom management through medications and non-pharmacological approaches enhances patient comfort. Open communication, empathy, and respecting patient autonomy are essential. Hospice prepares families for the dying process and grief counseling.

Read MoreEducating Facility Staff on What Matters for Terminally Ill Patients

Tube Feeding on Hospice — Increased Risk of Your Loved One Suffering

Considering tube feeding for a loved one in hospice? This intervention may not improve quality of life and can lead to discomfort, reduced mobility, and complications. Learn about the risks and make informed decisions for their end-of-life care. 

Read MoreTube Feeding on Hospice — Increased Risk of Your Loved One Suffering

Preparing for a Good Death: Topics to Cover with Hospice Patients and Their Families

I have worked with countless terminally ill patients and their families. One of the most important aspects of hospice care is ensuring that the patient and their loved ones are prepared for the end of life.

In this article, I will cover the topics that hospice nurses should discuss with patients and caregivers to ensure a good death.

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Hospice Eligibility and Hospice Recertification — information for families and new hospice nurses

As an experienced hospice nurse, I understand how overwhelming and emotional it can be for terminally ill patients and their loved ones to navigate the hospice process. Hospice care is a compassionate and comprehensive approach to end-of-life care, designed to provide comfort, pain management, and emotional support to patients and their families. However, many people have questions about hospice eligibility and hospice recertification. In this article, I will provide a generalized guide to help you understand these important aspects of hospice care.

Read MoreHospice Eligibility and Hospice Recertification — information for families and new hospice nurses

Understanding PRN Medications for Comfort Care

Hey there, my friend! As an experienced hospice nurse, I understand that managing symptoms for comfort is crucial for terminally ill patients. One of the ways we do this is through PRN medications. Today, I want to help you understand PRN medications and how they can be used in conjunction with scheduled medications.

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Hospice and the Pennsylvania Orders for Life Sustaining Treatment — POLST

A review of the implications of each choice for the terminally ill patient as well as the loved ones of those who are terminally ill. This form comes into practice typically under two conditions… no pulse and is not breathing OR has a pulse and/or is breathing (but while not mentioned is typically in the last two weeks of life if no measures are taken with the understanding that any and all measures do not guarantee a longer time frame). Let’s review the form below:

Read MoreHospice and the Pennsylvania Orders for Life Sustaining Treatment — POLST

Buccal vs Sublingual for Liquid Medications

Your dying patient has lost their gag reflex as part of the dying process. One of the questions I implore you to ask yourself is what’s the safest route to administer liquid medications? Well, before even going to answer this question, unless contraindicated, make sure the patient’s head of the bed is at least at a 30 to 45-degree angle (I prefer the latter).

The buccal route is the safest route to administer liquid medications at the end of life in my experience. In practice, I strongly encourage you as well as the families we mutually teach to give any liquid medications on the side of the mouth least likely to have spillage — this depends on the position of the patient — and slowly over time giving the medication in 0.25 ml increments allowing for the absorption of the medication switching cheeks as applicable.

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DNR and the Terminally Ill

Navigating conversations about Do Not Resuscitate (DNR) orders with terminally ill patients and their families can be challenging yet crucial for ensuring that the patient's wishes and comfort are prioritized. The decision between opting for DNR or full code often involves delicate emotions, medical considerations, and ethical concerns. In this article, we will delve into a methodology that has proven effective in facilitating these discussions, particularly in the context of hospice care. Drawing from years of experience and successful outcomes, we'll explore approaches that prioritize compassion, clarity, and patient-centered care. Additionally, we'll reference valuable resources to enhance understanding and guide these critical conversations.

Read MoreDNR and the Terminally Ill

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