Category: Advocacy

Advocacy issues in healthcare especially in the field of hospice

Advocating for your loved one on Hospice Services

Take Charge

When someone you love is extremely sick and needs hospice care, you may feel scared, sad, or angry. You may not know what to do or how to help them. You are not alone. Many people go through this challenging time.

As a hospice nurse, I have met many families who have loved ones in hospice. Some of them are continually active and involved in their care. They ask questions, make decisions, and speak up for their needs. Others are more passive and trusting. They let the doctors, nurses, and staff do whatever they think is best. They don’t say much or ask for anything.

Who do you think gets better care for their loved ones? The active ones or the passive ones?

Read MoreAdvocating for your loved one on Hospice Services

Optimizing Hospice Respite Care: A Comprehensive Guide for Families

Caring for a loved one who has a terminal illness can be extremely rewarding but also particularly challenging. You may feel exhausted, overwhelmed, or isolated by the demands of caregiving. You may also feel guilty or anxious about taking a break from your loved one. But you deserve time to rest, recharge, and care for yourself. That is why hospice respite care can be a great option for you and your loved one.

Hospice respite care is a service that allows you to temporarily place your loved one in a facility, such as a hospital, nursing home, or hospice house, where they can receive professional care and support. You can use this time to do whatever you need or want, such as sleeping, working, running errands, visiting friends, or enjoying a hobby. Respite care can last up to five days at a time.

Read MoreOptimizing Hospice Respite Care: A Comprehensive Guide for Families

Supporting a Loved One’s Decision to Stop Eating and Drinking Voluntarily

vsed and the body response

Explore how to support a loved one's decision to stop eating voluntarily and drinking (VSED) in hospice care. Learn about the ethical, emotional, and practical aspects of VSED, including its impact on patients and families, and how to provide compassionate care during this challenging end-of-life journey.

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Advocating for Your Terminally Ill Loved One in a Facility

As a family member of a terminally ill loved one receiving care in a facility, you play a vital role in ensuring they receive the best possible care and support during their journey towards a good death. Advocating for your loved one involves understanding their needs, communicating effectively with the facility staff, and staying informed about their care plan. This article aims to guide you on being an effective advocate, asking the right questions, and ensuring your loved one's comfort and well-being.

Read MoreAdvocating for Your Terminally Ill Loved One in a Facility

Eye-Opening Lessons on Trusting Nursing Facilities: Advocating for Comfort in End-of-Life Care

Empty Hospital Bed At A Nursing Facility

As an experienced hospice visiting registered nurse, today offered me profound insights from two interconnected perspectives. The first highlights the blind trust we often place in facility nurses and doctors when caring for our loved ones. The second involves the challenges I encountered while advocating for proper end-of-life care for a patient with Alzheimer's.

Read MoreEye-Opening Lessons on Trusting Nursing Facilities: Advocating for Comfort in End-of-Life Care

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