Category: Advocacy
Advocacy issues in healthcare especially in the field of hospice
Top Ten Myths About CPR for Terminally Ill Patients
You may think that CPR is a miracle that can save anyone’s life, but that is not always the case. CPR is not practical for terminally ill patients, and it can cause more harm than good. In fact, studies show that only about 5% of terminally ill patients who receive CPR survive to leave the hospital. Many of them suffer from brain damage, broken ribs, or infections because of CPR.
This article aims to help you understand the truth about CPR for terminally ill patients. We will debunk ten common myths you may have heard or believed about CPR and provide you with accurate and reliable information. We will also help you make informed and respectful decisions about CPR for your loved one based on their wishes and values.
Hospice – Patient and Family Autonomy
Hospice care is often misunderstood. A common myth suggests that once a patient with a terminal illness enters hospice, they lose control over their care. This article aims to dispel this misconception and highlight the central role of patient and family autonomy in hospice settings. It's important to note that this discussion primarily applies to patients receiving care at home or in non-facility settings, as facility-based patients may have less control over their care decisions.
Empowering Caregivers: Effective Communication with Healthcare Providers
Discover how to use the CUS tool and Caring Feedback Model to advocate for your loved one's health. This guide empowers caregivers to communicate effectively with healthcare providers, ensuring their concerns are heard and addressed.
How to Communicate Effectively with Healthcare Professionals as a Family Member of a Patient with a Terminal Illness
Learn how to communicate effectively with healthcare professionals when caring for a loved one with a terminal illness. Improve communication, advocacy, and coping skills to ensure your loved one receives the best care possible.
Navigating the Complex World of Dementia and Seizures
This article delves into the intricate relationship between dementia and seizures, offering insights on identification, safety protocols, and advocacy for caregivers.
The Rising Significance of End-of-Life Doulas in Hospice Care
This article delves into the growing importance of End-of-Life Doulas in hospice care. It provides insights into their role, their support to patients and families, and their impact on the quality of end-of-life care.
The Dark Side of Hospice at a Facility
Hospice care in facilities can face challenges due to facility policies, staffing issues, and lack of coordination with hospice providers. This article sheds light on the struggles patients, families, and hospice nurses face in ensuring timely, appropriate care.
Ensuring Quality Care: The Vital Role of Regular Care Plan Meetings
Uncover the importance of regular care plan meetings at healthcare facilities. This guide details participants, goals, benefits, and risks of non-participation.
Choosing Your Hospice Care: Understanding Patient and Family Rights
An article that guides families through understanding and exercising their rights to choose the best hospice care for their loved ones, ensuring their final chapter is written with compassion and respect.
Doctors Ignoring Family Concerns in Dementia Care
Welcome to our discussion on a topic close to many hearts: the care of our loved ones with dementia. When a family member is diagnosed with dementia, it feels like a part of them slowly fades away. But as they lose parts of themselves, your role in their life becomes even more crucial. This article isn’t just words on a page; it’s a beacon of hope and understanding, shining a light on why your voice, as a family member, is vital in the care of your loved one.
Hospice Access for Undocumented Immigrants
Welcome to our guide on hospice care for undocumented immigrants. This article is crafted with the utmost empathy to support family members and caregivers as they navigate the complexities of end-of-life care. Our goal is to provide a clear understanding of hospice services and the unique challenges faced by undocumented immigrants during these tender moments.
Advocating for your loved one on Hospice Services
When someone you love is extremely sick and needs hospice care, you may feel scared, sad, or angry. You may not know what to do or how to help them. You are not alone. Many people go through this challenging time.
As a hospice nurse, I have met many families who have loved ones in hospice. Some of them are continually active and involved in their care. They ask questions, make decisions, and speak up for their needs. Others are more passive and trusting. They let the doctors, nurses, and staff do whatever they think is best. They don’t say much or ask for anything.
Who do you think gets better care for their loved ones? The active ones or the passive ones?
Optimizing Hospice Respite Care: A Comprehensive Guide for Families
Caring for a loved one who has a terminal illness can be extremely rewarding but also particularly challenging. You may feel exhausted, overwhelmed, or isolated by the demands of caregiving. You may also feel guilty or anxious about taking a break from your loved one. But you deserve time to rest, recharge, and care for yourself. That is why hospice respite care can be a great option for you and your loved one.
Hospice respite care is a service that allows you to temporarily place your loved one in a facility, such as a hospital, nursing home, or hospice house, where they can receive professional care and support. You can use this time to do whatever you need or want, such as sleeping, working, running errands, visiting friends, or enjoying a hobby. Respite care can last up to five days at a time.
Supporting a Loved One’s Decision to Stop Eating and Drinking Voluntarily
Explore how to support a loved one's decision to stop eating voluntarily and drinking (VSED) in hospice care. Learn about the ethical, emotional, and practical aspects of VSED, including its impact on patients and families, and how to provide compassionate care during this challenging end-of-life journey.
Advocating for Your Terminally Ill Loved One in a Facility
As a family member of a terminally ill loved one receiving care in a facility, you play a vital role in ensuring they receive the best possible care and support during their journey towards a good death. Advocating for your loved one involves understanding their needs, communicating effectively with the facility staff, and staying informed about their care plan. This article aims to guide you on being an effective advocate, asking the right questions, and ensuring your loved one's comfort and well-being.
Eye-Opening Lessons on Trusting Nursing Facilities: Advocating for Comfort in End-of-Life Care
As an experienced hospice visiting registered nurse, today offered me profound insights from two interconnected perspectives. The first highlights the blind trust we often place in facility nurses and doctors when caring for our loved ones. The second involves the challenges I encountered while advocating for proper end-of-life care for a patient with Alzheimer's.