Navigating the complexities of end-stage Progressive Supranuclear Palsy can be challenging. Our comprehensive guide provides essential information, practical tips, and empathetic support to help families and caregivers through this difficult time.
Welcome to our guide on hospice care for undocumented immigrants. This article is crafted with the utmost empathy to support family members and caregivers as they navigate the complexities of end-of-life care. Our goal is to provide a clear understanding of hospice services and the unique challenges faced by undocumented immigrants during these tender moments.
In the world of healthcare, when a provider writes an order to "Eval and Treat" for hospice, they are asking for a thorough evaluation and a tailored treatment plan. This is specifically meant for patients who are being considered for hospice care. Let's delve into what this means and why it's crucial.
What Does "Eval and Treat" for Hospice Mean?
When someone you love is extremely sick and needs hospice care, you may feel scared, sad, or angry. You may not know what to do or how to help them. You are not alone. Many people go through this challenging time.
As a hospice nurse, I have met many families who have loved ones in hospice. Some of them are continually active and involved in their care. They ask questions, make decisions, and speak up for their needs. Others are more passive and trusting. They let the doctors, nurses, and staff do whatever they think is best. They don’t say much or ask for anything.
Who do you think gets better care for their loved ones? The active ones or the passive ones?
Discover compassionate approaches to nourishing terminally ill loved ones. Learn about appetite changes, feeding techniques, and the importance of emotional support during meals. This guide offers practical tips for caregivers to ensure comfort and dignity while addressing nutritional needs in end-of-life care.
Caring for a comatose loved one during their hospice journey requires special attention, particularly when it comes to oral care. In this guide, we'll explore best practices for oral care, considering the unique needs of comatose patients, and provide you with valuable resources for further guidance.
Caring for a loved one with dysphagia during their end-of-life journey can be challenging, but with the proper knowledge and support, you can provide them with comfort and dignity. Dysphagia, or difficulty swallowing, is a common symptom in terminally ill patients and can lead to complications if not managed properly. In this guide, we will provide you with essential information on managing dietary changes and what to expect and offer helpful tips and tricks to ensure your loved one's comfort.
Explore how to support a loved one's decision to stop eating voluntarily and drinking (VSED) in hospice care. Learn about the ethical, emotional, and practical aspects of VSED, including its impact on patients and families, and how to provide compassionate care during this challenging end-of-life journey.
Learn effective strategies for managing hallucinations in terminally ill patients. This guide covers pharmacological and non-pharmacological methods to improve comfort and quality of life.
Explore the journey through terminal illness, understanding key signs and symptoms at each stage. This guide offers insight into the physical and emotional changes as life nears its end, helping caregivers provide compassionate support.
The PAINAD scale is a comprehensive tool that assesses and manages pain in older adults with dementia and delirium. It focuses on observable signs of pain rather than patient self-report, making it particularly useful for individuals who cannot communicate their discomfort
Discover hospice care, eligibility, benefits, provider choice, costs, services, and more. Learn how hospice addresses physical, emotional, spiritual, and social needs and how to prepare for and manage them. Find out about the roles of the hospice team and the primary caregiver and the signs of approaching death. Empower yourself with the knowledge to make informed decisions about compassionate end-of-life care.
It is common for family members and caregivers who are not trained in end-of-life topics to be concerned about their loved one's oxygen concentration (SpO2 and sometimes also abbreviated SPaO2) reading from a pulse oximeter. Suppose their loved one refuses external oxygen or takes off the external oxygen. In that case, this often causes distress to the family and caregivers because they are focused on the numbers vs. the patients themselves. Hospice is about patient-centered care, and I would like to present four case studies to demonstrate how hospice manages this situation with compassion.
I know how important it is to provide comfort and support during this challenging journey. One aspect of hospice care that often raises concerns is deprescribing medications. In this article, we'll explore what deprescribing is and why it can benefit patients nearing the end of life.
As an experienced hospice nurse with years of experience, I understand that coping with a loved one's diagnosis of Chronic Obstructive Pulmonary Disease (COPD) can be overwhelming and challenging. In this article, we'll explore what to expect over the course of the disease, the changes you might notice in your loved one, and how to provide the best care and support from the onset until the end.
If you have a loved one with dementia, it can be difficult to know if they are in pain or discomfort. The Pain Assessment in Advanced Dementia Scale (PAINAD) is a tool that can help you determine if your loved one is uncomfortable. The Pain Assessment in Advanced Dementia Scale (PAINAD) is different from other pain assessment tools for people with dementia in several ways:
When a loved one is terminally ill, it can be a perplexing and emotional journey. Understanding the root cause of their declining health becomes paramount. It's a complex puzzle where family members often grapple with questions: Are the symptoms a result of medications prescribed, or are they intrinsic to the terminal disease? This article delves into the critical distinctions between medication side effects and the natural progression of terminal illnesses, offering insights to empower families and caregivers in making informed decisions about their loved one's care.
Hospice care is often misunderstood and shrouded in myths that can prevent individuals and families from accessing the compassionate support they need during a challenging time. This article will address common misconceptions about hospice care and provide you with the facts. We aim to empower you with accurate information to make informed decisions when considering hospice for yourself or a loved one.
Dementia is a condition that affects millions of people worldwide, and it can cause a range of symptoms, including pain and discomfort. Unfortunately, pain is often under-detected and undertreated in people with dementia, leading to significant suffering and a reduced quality of life. In this article, we will explore the prevalence of pain among dementia patients, the impact of unmanaged pain on their quality of life, behavioral changes that may indicate pain, and the use of the PAINAD pain scale as a tool for assessing and managing pain in dementia patients.
Caring for a loved one with a history of diverticulitis requires a combination of preventive measures, early detection of warning signs, and understanding the common signs and symptoms of this condition. Your role as a caregiver is crucial in providing support and assistance to ensure their well-being. In this comprehensive guide, we will explore essential aspects of caring for someone with diverticulitis, including prevention, early warning signs, and treatment options.
Caring for a terminally ill loved one is a profound and challenging journey that requires compassion, understanding, and a willingness to alleviate any discomfort they may experience. In this guide, we will explore the concept of discomfort, its distinction from pain, and the importance of recognizing and addressing discomfort in addition to pain. You'll be better equipped to provide holistic care that enhances your loved one's quality of life during this sensitive time.
Throughout your loved one's illness, you might find yourself thinking that they don't require "pain medication" because they don't seem to be in pain. They might even respond with a direct "no" when asked about their pain. However, are you aware that most types of pain medication can alleviate discomfort? Did you also know that your loved one could be feeling uncomfortable without necessarily being in severe pain? Nonetheless, it's important to recognize that their discomfort requires the same treatment as if they were in pain.
Explore the delicate balance of IV fluid use at life’s end. This article discusses the hospice approach, potential risks, and prioritizing comfort over invasive measures. A must-read for families facing tough decisions in palliative care.