Category: Caregiving Tips
Articles for caregivers of terminally ill patients including how to manage challenging situations.
Post-Admission Visit in Hospice Care: What to Expect and Questions to Ask
If you or someone you love has a serious illness that cannot be cured, you may have heard of hospice care. Hospice care is a special kind that focuses on making the patient comfortable and peaceful in their final days. Hospice care also supports the family and caregivers emotionally and spiritually.
When a patient joins hospice care, they will have a special meeting with a hospice nurse. This meeting is called the post-admission visit. It is an especially important visit because it will help the patient and the family get to know the hospice team and learn more about the care they will receive.
This article will explain what to expect and what to ask during the post-admission visit. We will also provide tips and resources to help you and your loved one make the most of this time. We hope this article will help you feel more prepared and confident about the hospice journey.
Understanding Creutzfeldt-Jakob Disease (CJD) and How to Care for Your Loved One
Facing Creutzfeldt-Jakob Disease (CJD) can be overwhelming, but with the right information and compassionate care, you can navigate this journey with your loved one. This guide is designed to help families new to CJD understand what to expect, recognize changes in their loved one, and provide the best care from onset
Demonstrating Compassion
Discover practical ways to show compassion in hospice care. Learn how small gestures like active listening, gentle touch, and respecting personal space can make a significant difference. Explore the importance of empathy, cultural sensitivity, and self-care for caregivers in providing compassionate end-of-life support.
Navigating Dementia: A Guide to Supportive Supplements
Discover how Lion’s Mane, Magnesium Glycinate, Vitamins D3, K2, B1, Folate, C, and MTC Oil can play a role in dementia care. This article delves into the latest research and expert insights on natural supplements that support cognitive function and overall brain health.
Natural Remedies for Dementia Anxiety: Ashwagandha and CBD
Explore the use of ashwagandha and CBD to ease anxiety in dementia patients. Learn about dosages, safety precautions, and real-life stories.
Understanding and Managing Sundowning in Dementia: Ensuring Safety for Your Loved One
Sundowning, or "late-day confusion," is a challenging experience for individuals with dementia and their caregivers. This phenomenon, occurring in the late afternoon or evening, brings about increased confusion, anxiety, and agitation. Caregivers need to comprehend sundowning and offer compassionate care to ensure the well-being of their loved ones. This article delves into effective pharmacological and non-pharmacological strategies to manage sundowning and create a safe environment.
Caring for Elderly Parents with Dementia Who Refuse Help
Navigating the challenges of caring for an elderly parent with dementia can be tough, especially when they resist help. This guide offers practical advice and compassionate strategies to support your loved one while respecting their autonomy and dignity.
Understanding Dementia Medication Side Effects: A Guide for Families
Discover the potential side effects of dementia medications and how to support your loved one. Stay informed!
The Importance of Routines and Consistency for Patients with Dementia
Maintaining routines and consistency can significantly improve the overall well-being and quality of life of a loved one with dementia. As a caregiver, understanding the value of routines and how they can positively impact your loved one's journey through dementia is crucial. In this article, we'll explore why routines matter, how to establish them, and their benefits to patients and caregivers.
Encouraging Dementia Patients to Take a Bath or Shower: 3 Gentle Methods
Discover gentle methods to encourage dementia patients to bathe. Learn how to create a positive bathing experience, use distraction techniques, and maintain a consistent routine. These compassionate approaches help caregivers navigate hygiene challenges while preserving dignity and reducing stress for both patient and caregiver.
Doctors Ignoring Family Concerns in Dementia Care
Welcome to our discussion on a topic close to many hearts: the care of our loved ones with dementia. When a family member is diagnosed with dementia, it feels like a part of them slowly fades away. But as they lose parts of themselves, your role in their life becomes even more crucial. This article isn’t just words on a page; it’s a beacon of hope and understanding, shining a light on why your voice, as a family member, is vital in the care of your loved one.
Understanding Repetitive Questions of Dementia Patients
When caring for a loved one with dementia, it's important to approach their needs with empathy and understanding. Dementia is a progressive condition that affects memory, thinking, and communication. As a caregiver or family member, it's crucial to adapt your communication style and strategies to best support your loved one. This article will guide you through the stages of dementia, address common symptoms like anxiety and agitation, provide techniques to reduce caregiver burnout, create a calm environment, and effectively respond to repetitive questions.
Optimizing Hospice Respite Care: A Comprehensive Guide for Families
Caring for a loved one who has a terminal illness can be extremely rewarding but also particularly challenging. You may feel exhausted, overwhelmed, or isolated by the demands of caregiving. You may also feel guilty or anxious about taking a break from your loved one. But you deserve time to rest, recharge, and care for yourself. That is why hospice respite care can be a great option for you and your loved one.
Hospice respite care is a service that allows you to temporarily place your loved one in a facility, such as a hospital, nursing home, or hospice house, where they can receive professional care and support. You can use this time to do whatever you need or want, such as sleeping, working, running errands, visiting friends, or enjoying a hobby. Respite care can last up to five days at a time.
Review of Gone from My Sight by Barbara Karnes, RN
As an experienced hospice nurse with years of experience, I have come across numerous resources that aim to guide families and caregivers through the process of dying. One such resource that stands out is "Gone from my sight: The Dying Experience" by Barbara Karnes, RN. This booklet, often referred to as the "Little Blue Book," has been a staple for hospice providers for over three decades, and for good reason.
Nourishing with Care: Feeding a Terminally Ill Loved One
Discover compassionate approaches to nourishing terminally ill loved ones. Learn about appetite changes, feeding techniques, and the importance of emotional support during meals. This guide offers practical tips for caregivers to ensure comfort and dignity while addressing nutritional needs in end-of-life care.
Managing Diabetic Ketoacidosis and Hyperosmolar Hyperglycemic State at End of Life: A Comfort-Based Approach
As an experienced hospice nurse, I understand that managing diabetic ketoacidosis (DKA) and hyperosmolar hyperglycemic state (HHS) at end of life can be challenging, especially when patients choose to stop taking their diabetic medications or when those medications are no longer an option. In this article, I will provide information on recognizing the signs and symptoms of hyperglycemic crises and outline comfort-based treatment options that align with hospice goals of care.
Traveling While on Hospice: Making the Most of Precious Moments Together
Discover how hospice patients can safely travel and create lasting memories with loved ones. Learn about essential preparations, medical considerations, and tips for a smooth journey. Explore ways to make the most of precious moments together while ensuring comfort and care during travel.
Caring for a Loved One with Dementia: Encouraging Medication Compliance
Caring for a loved one with dementia can be challenging. One common struggle caregivers face is ensuring their loved one takes their medications. Dementia can make understanding and remembering medications difficult. In this guide, we'll explore effective strategies for encouraging your loved ones with dementia to take their medications, considering their unique needs.
Understanding Terminal Illness: How to Recognize the Signs Using Your Senses
Facing the reality of a loved one's terminal illness can be a challenging and emotional journey. As a hospice registered nurse case manager, I understand the importance of providing compassionate and clear information to empower patients, caregivers, and families. In this article, we'll explore how you, as a family member, can use your own observations and senses to recognize the signs that your loved one may be in the terminal stage of their illness. Remember, while medical professionals have their tools, your observations and intuition significantly matter.
Understanding and Managing Contractures
I know that the journey you and your loved one are on can be challenging, especially when facing a terminal illness. As an experienced hospice nurse caring for terminally ill patients, I want to provide you with some valuable insights on a common issue that may arise during this time: contractures.
How to Care for People with Dementia: The Importance of Patience, Compassion and Empathy
Caring for someone with dementia requires understanding and a heart full of compassion. This guide highlights the importance of patience and empathy and their profound impact on enhancing the lives of those with dementia.
Managing Shortness of Breath in Hospice Care: Non-Pharmacological Methods for Comfort
Discover effective non-pharmacological methods to manage shortness of breath in hospice care. Learn about positioning techniques, breathing exercises, and environmental adjustments that can comfort and relieve patients experiencing dyspnea, enhancing their quality of life during end-of-life care.
How to Support a Dementia Patient Who Tries to Escape from a Memory Care Facility
Elopement is when a person with dementia leaves a safe area, like their home or care facility, without supervision. This can be intentional or unintentional, and it's important to address to ensure the safety of the patient. If your loved one is attempting to escape from a memory care facility, there are steps you can take to support both them and the facility.
Coping with a Loved One’s Placement in a Nursing Home: Supporting Patients with Dementia
This article will try to help you cope with this challenge. We will give you some information and advice on how to:
Prepare for the transition to a nursing home
Support your loved one during and after the move
Take care of yourself and your family.