Category: Palliative Care
Articles about palliative care including the differences between palliative care and hospice care which is palliative care at end-of-life.
Frontal Lobe Dementia: Understanding and Caring for Your Loved One
Facing a loved one's diagnosis of frontal lobe dementia can be overwhelming and challenging. This article aims to provide families with essential information about frontal lobe dementia, its progression, changes they might observe in their loved one, and best practices for caregiving from onset until the end of life.
Read MoreFrontal Lobe Dementia: Understanding and Caring for Your Loved OneCaring in Crisis: Navigating the Challenges of Hospice Care in 2023
Hospice care is a vital form of healthcare dedicated to providing comfort and support to patients in their final stages of life. While it's a relatively recent concept in the United States, with its inception in 1974, it has gained significant popularity, with over half of Medicare beneficiaries in 2020 receiving hospice services. Nevertheless, as we delve into 2023, hospice care confronts several formidable challenges. These include labor shortages, concerns about the quality of care, and the notable presence of for-profit entities in the industry. In this article, we will navigate through the history of hospice care in the United States, its present state in 2023, and the challenges that affect not only hospice patients but also the dedicated staff and providers.
Read MoreCaring in Crisis: Navigating the Challenges of Hospice Care in 2023Reviewing Hospice Eligibility
It’s essential to familiarize yourself with the key local coverage determination (LCD) facts for different terminal illnesses to avoid admitting patients who are not eligible for services only to be required to refund the money back to Medicare; otherwise, only have the patient on for one benefit period then discharged for failure to decline. These determinations provide guidelines on the coverage of hospice services for specific conditions. If you are the admitting nurse, please do not just admit because you were told to admit by someone, regardless of the position or standing of the person or party that told you to admit. Use your critical thinking and clinical judgment skills to evaluate the patient for admission. Most doctors will write "evaluate and treat" or something to that effect; never lose sight of the "evaluate" portion of the doctor's order.
Based on the provided PDF files, as noted in the resources section below, let’s explore some essential information for each terminal illness.
Read MoreReviewing Hospice EligibilityFailure to Decline in Hospice – The Good and The Ugly
If your loved one is facing a discharge from hospice due to failure to decline, it's crucial to comprehend the situation clearly. This discharge indicates that the healthcare team believes your loved one's condition has stabilized and no longer requires hospice care. While this might be a positive sign, it's important to weigh the pros and cons before making decisions. Let's delve into both the positive and negative aspects of this situation to help you navigate it effectively.
Read MoreFailure to Decline in Hospice – The Good and The UglyUnderstanding Discomfort: Distinguishing it from Pain While Caring for Your Terminally Ill Loved One
Caring for a terminally ill loved one is a profound and challenging journey that requires compassion, understanding, and a willingness to alleviate any discomfort they may experience. In this guide, we will explore the concept of discomfort, its distinction from pain, and the importance of recognizing and addressing discomfort in addition to pain. You'll be better equipped to provide holistic care that enhances your loved one's quality of life during this sensitive time.
Throughout your loved one's illness, you might find yourself thinking that they don't require "pain medication" because they don't seem to be in pain. They might even respond with a direct "no" when asked about their pain. However, are you aware that most types of pain medication can alleviate discomfort? Did you also know that your loved one could be feeling uncomfortable without necessarily being in severe pain? Nonetheless, it's important to recognize that their discomfort requires the same treatment as if they were in pain.
Read MoreUnderstanding Discomfort: Distinguishing it from Pain While Caring for Your Terminally Ill Loved OneAdvocating for Your Terminally Ill Loved One in a Facility
As a family member of a terminally ill loved one receiving care in a facility, you play a vital role in ensuring they receive the best possible care and support during their journey towards a good death. Advocating for your loved one involves understanding their needs, communicating effectively with the facility staff, and staying informed about their care plan. This article aims to guide you on being an effective advocate, asking the right questions, and ensuring your loved one's comfort and well-being.
Read MoreAdvocating for Your Terminally Ill Loved One in a FacilityThe Hospice Admission Nurse
This article delves into hospice care with Andrew Viozzi, an adept hospice admission registered nurse. Andrew brings valuable insights into the hospice admission process and the broader spectrum of hospice care. Although Andrew's current position revolves around admissions, his extensive experience encompasses case management, preceptorship, mentorship, and the guidance of new hospice nurses. In this article, we dispel misconceptions, highlight the advantages of hospice care, outline the admission procedure, and emphasize the pivotal role of hospice in end-of-life care.
Read MoreThe Hospice Admission NurseEye-Opening Lessons on Trusting Nursing Facilities: Advocating for Comfort in End-of-Life Care
As an experienced hospice visiting registered nurse, today offered me profound insights from two interconnected perspectives. The first highlights the blind trust we often place in facility nurses and doctors when caring for our loved ones. The second involves the challenges I encountered while advocating for proper end-of-life care for a patient with Alzheimer's.
Read MoreEye-Opening Lessons on Trusting Nursing Facilities: Advocating for Comfort in End-of-Life CareThe Unsung Heroes of Hospice Care: Celebrating the Vital Role of Certified Nursing Assistants (CNAs)
In the realm of hospice care, compassion and comfort take precedence. A team of skilled professionals comes together to offer comprehensive support to patients, their families, and caregivers. Among these essential contributors, Certified Nursing Assistants (CNAs) stand out as unsung heroes, bringing immeasurable value to the field of hospice care. This article delves into the distinctive role CNAs play in hospice, their frequent and meaningful interactions, and their leadership within the hospice team.
Read MoreThe Unsung Heroes of Hospice Care: Celebrating the Vital Role of Certified Nursing Assistants (CNAs)The Actively Dying Phase of The Dying Process
For a non-healthcare professional who has never witnessed death before, it can be unsettling to be present with someone who is nearing the end of their life. However, there are certain signs and observations that you can make using your senses that may indicate that the person you are with may pass away within seconds, minutes, or hours. Understanding these signs can help you provide support and comfort to the individual and their loved ones during this grim time.
Read MoreThe Actively Dying Phase of The Dying ProcessBreathing Patterns Before End of Life: Critical Clues for the Last Hours!
Understanding the final breath: This article explores the critical breathing patterns observed in the last hours of life, offering insights for caregivers and family members to prepare for the end-of-life journey.
Read MoreBreathing Patterns Before End of Life: Critical Clues for the Last Hours!The Transitioning Phase of The Dying Process
Losing a loved one is an incredibly challenging and emotional experience. If you find yourself in the presence of someone in the transitioning phase of the dying process, knowing what signs to look for can be helpful. Although every individual's experience may vary, some common observations may indicate someone is in the transitioning phase. Here's a guide to help you recognize these signs and provide support during this grim time.
Read MoreThe Transitioning Phase of The Dying ProcessPreventing Friction and Shear Injuries in Elderly Care: A Guide for Non-Health Professionals
Taking care of an elderly fragile person at home can be both rewarding and challenging. One crucial aspect of caregiving is preventing friction and shear injuries, which can be painful and detrimental to the person's well-being. In this article, we'll explore what friction and shear injuries are, how they can be avoided, and some practical tips to ensure your loved one's safety and comfort.
Read MorePreventing Friction and Shear Injuries in Elderly Care: A Guide for Non-Health ProfessionalsThe Power of Empathy in Hospice Care
It's common in nursing to be told by others that you shouldn't be a nurse, and some may even call you a "fake nurse" if you don't meet their standards of what they think is required to be a nurse. The first time I was told I could not be a nurse was by an elderly woman who believed only women could be nurses.
Read MoreThe Power of Empathy in Hospice CareIs Dying Painful?
Dying doesn’t always hurt. The amount and type of pain there is at the end of life can differ. The specific diagnosis and cause of pain are factors.
Read MoreIs Dying Painful?Understanding Hospice Care: Is it Too Early to Start Hospice?
Is it Too Early to Start Hospice?
It's crucial to remember that hospice care is about improving the quality of life for the patient and their family, regardless of the time left. Hospice care can be initiated when the patient's condition is declining and they require comfort-focused care rather than life-prolonging treatments. Starting hospice care early can provide ample time for the patient and their family to benefit from the support and services offered.
If you're unsure when to consider hospice care, consult the patient's primary physician or a hospice care provider. They can guide you through the process and help you make an informed decision based on the patient's needs and circumstances.
Read MoreUnderstanding Hospice Care: Is it Too Early to Start Hospice?Understanding the Role of IV Fluids at the End of Life
Explore the delicate balance of IV fluid use at life’s end. This article discusses the hospice approach, potential risks, and prioritizing comfort over invasive measures. A must-read for families facing tough decisions in palliative care.
Read MoreUnderstanding the Role of IV Fluids at the End of LifeEmpowering Hospice Nurses: Conquering Medicare Audits and Improving Documentation for Better Patient Care
This article provides valuable insights for hospice nurses on improving documentation to conquer Medicare audits and ensure claims are not denied due to insufficient evidence of terminal prognosis. The author shares real-life examples of visit narratives before and after implementing documentation best practices learned from an expert. The tips focus on capturing negative condition changes, disorientation levels, and functional decline to paint a clear picture of the patient's terminal state, ultimately leading to better patient care.
Read MoreEmpowering Hospice Nurses: Conquering Medicare Audits and Improving Documentation for Better Patient CareWhat Does Hospice in a Home Setting Look Like?
Caring for a terminally ill loved one can be challenging. Still, with the proper support and understanding, you can help ensure they experience a comfortable and dignified end of life. Hospice care offers specialized medical and emotional support during this time. This guide aims to empower families new to hospice services by providing essential information on what to expect from a hospice provider and how to manage the journey towards a good death.
Read MoreWhat Does Hospice in a Home Setting Look Like?Educating Facility Staff on What Matters for Terminally Ill Patients
Educating nursing home staff on hospice care priorities like shifting focus from vital signs to comfort, managing symptoms like pain/breathlessness, providing psychosocial support, end-of-life planning, and bereavement care is crucial. Hospice emphasizes quality of life over curative treatments. Effective symptom management through medications and non-pharmacological approaches enhances patient comfort. Open communication, empathy, and respecting patient autonomy are essential. Hospice prepares families for the dying process and grief counseling.
Read MoreEducating Facility Staff on What Matters for Terminally Ill PatientsThe Life of Least Regrets
The longer I work in hospice, the more I'm reminded about two critical pieces of wisdom: 1) Hospice is about living, and 2) we should all do our best to live a life of least regrets.
While this article is geared towards family members with a terminally ill loved one, as well as my fellow workers in the fields of palliative and hospice care, I believe the thoughts that I will share apply to everyone alive near and far.
Read MoreThe Life of Least RegretsReview of the Hospice Documentation Master Bundle
Whether you are a new hospice nurse or an experienced one like me, I would hope that it is your desire to prove and support continued hospice eligibility for your patients and families. In my years as a hospice nurse, I've always felt the training on what words and phrases to use to support hospice eligibility was weak compared to the training received in other areas of nursing. Now, you have a means of getting the education you need in a very portable setup that you can take with you, use as you see fit, and bloom!
Read MoreReview of the Hospice Documentation Master BundleTube Feeding on Hospice — Increased Risk of Your Loved One Suffering
Considering tube feeding for a loved one in hospice? This intervention may not improve quality of life and can lead to discomfort, reduced mobility, and complications. Learn about the risks and make informed decisions for their end-of-life care.
Read MoreTube Feeding on Hospice — Increased Risk of Your Loved One SufferingThe Ins and Outs of Hospice Patients Seeing Their Regular Doctor and Specialists
When it comes to hospice care, one common question that arises is whether terminally ill patients should continue seeing their regular doctor or specialists. As an experienced hospice nurse, I have witnessed the benefits and challenges of maintaining these relationships. In this article, we’ll explore the pros and cons of hospice patients still visiting their general practitioners and specialists from the perspective of patients and their families.
Read MoreThe Ins and Outs of Hospice Patients Seeing Their Regular Doctor and Specialists