Category: Palliative Care
Articles about palliative care including the differences between palliative care and hospice care which is palliative care at end-of-life.
Understanding End Stage Renal Disease and How to Care for Your Loved One
If your loved one has been diagnosed with End Stage Renal Failure, it's natural to feel overwhelmed and unsure about what to expect during the disease. As an experienced hospice nurse with years of experience, I am here to guide you through this journey with compassion and empathy. In this article, we will cover what end-stage renal Failure is, the changes you may observe in your loved one, and how to provide the best care from onset until the end of life.
Read MoreUnderstanding End Stage Renal Disease and How to Care for Your Loved OneA Holistic Approach: Hospice Nursing Assessment vs. Hospital/Nursing Home Assessment
Explore the compassionate approach of hospice nursing assessments, emphasizing patient comfort and dignity over conventional hospital metrics. This article delves into the personalized care that defines hospice evaluations, ensuring a serene transition for patients and families.
Read MoreA Holistic Approach: Hospice Nursing Assessment vs. Hospital/Nursing Home AssessmentWhy Saying Goodbye to Your Dying Loved One Matters
Losing a loved one to a terminal illness is an incredibly challenging experience. It's a journey filled with emotions, uncertainties, and the need for profound empathy. One crucial aspect of this journey is saying goodbye to your dying loved one and permitting them to pass peacefully. In this article, we'll explore the significance of these acts, which bring comfort to the terminally ill and aid in the grieving process for those left behind. We'll also share three case studies to illustrate the importance of these actions.
Read MoreWhy Saying Goodbye to Your Dying Loved One MattersUnderstanding Multiple Sclerosis (MS) and How to Care for Your Loved One: A Guide for Families
Receiving a diagnosis of Multiple Sclerosis (MS) can be overwhelming for both the patient and their family. As an experienced hospice nurse with years of experience, I am here to provide you with information and support on what to expect over the course of the disease. In this guide, we will discuss the changes your loved one may experience and how you can best care for them from the onset of MS until the end of life.
Read MoreUnderstanding Multiple Sclerosis (MS) and How to Care for Your Loved One: A Guide for FamiliesThe Death Visit from a Hospice Nurse
Losing a loved one is an incredibly challenging and emotional experience, and witnessing someone's final moments can be overwhelming, especially if you have never been through it before. As a hospice nurse with years of experience, I understand the importance of providing guidance and support during this time. In this article, I want to help prepare you for what to expect during the death visit and explain the role of the hospice registered nurse in the pronouncement process.
Read MoreThe Death Visit from a Hospice NurseThe Last Breath of Life
As a caregiver or family member, witnessing the final hour of a loved one's life can be a challenging and emotional experience. It's essential to be prepared and understand what to expect. While each person's journey is unique, some common physical changes may occur in the last hour of life. Here's a guide to help you navigate this sensitive time:
Read MoreThe Last Breath of LifeUnderstanding Heart Failure and What to Expect: A Guide for Families
Dealing with a loved one's heart failure can be overwhelming, but with the right knowledge and support, you can provide the best care possible. This guide aims to help families understand what heart failure is, what changes to expect in their loved one's condition, and how to provide compassionate care throughout the journey, from onset to end-of-life.
Read MoreUnderstanding Heart Failure and What to Expect: A Guide for FamiliesFour Case Studies About External Oxygen on Hospice
It is common for family members and caregivers who are not trained in end-of-life topics to be concerned about their loved one's oxygen concentration (SpO2 and sometimes also abbreviated SPaO2) reading from a pulse oximeter. Suppose their loved one refuses external oxygen or takes off the external oxygen. In that case, this often causes distress to the family and caregivers because they are focused on the numbers vs. the patients themselves. Hospice is about patient-centered care, and I would like to present four case studies to demonstrate how hospice manages this situation with compassion.
Read MoreFour Case Studies About External Oxygen on HospiceHow to Respond to a Dementia Patient Asking About a Deceased Family Member
When a dementia patient inquiries about a family member who has passed away but still believes them to be alive, it's essential to respond with empathy and understanding. Here are some tips on how to handle such situations with compassion and sensitivity:
Read MoreHow to Respond to a Dementia Patient Asking About a Deceased Family MemberThe Benefits of Deprescribing Medications in Hospice: A Guide for Patients, Families, and Hospice Nurses
I know how important it is to provide comfort and support during this challenging journey. One aspect of hospice care that often raises concerns is deprescribing medications. In this article, we'll explore what deprescribing is and why it can benefit patients nearing the end of life.
Read MoreThe Benefits of Deprescribing Medications in Hospice: A Guide for Patients, Families, and Hospice NursesSignificant Signs a Terminally Ill Patient may be Close to Dying
Recognizing end-of-life signs can be challenging. This guide outlines key symptoms indicating a terminally ill patient may have less than two weeks, offering crucial insights for caregivers and families.
Read MoreSignificant Signs a Terminally Ill Patient may be Close to DyingUnderstanding COPD: A Guide for Families
As an experienced hospice nurse with years of experience, I understand that coping with a loved one's diagnosis of Chronic Obstructive Pulmonary Disease (COPD) can be overwhelming and challenging. In this article, we'll explore what to expect over the course of the disease, the changes you might notice in your loved one, and how to provide the best care and support from the onset until the end.
Read MoreUnderstanding COPD: A Guide for FamiliesUnderstanding Memory and Cognitive Testing for Dementia
Caring for a loved one with dementia can be a challenging journey, filled with complex emotions and difficult decisions. As families and caregivers, it's crucial to understand the nature of dementia and the various tools available to help assess and manage the condition. This article aims to provide a comprehensive guide to the seven most common memory tests used to evaluate if a person has dementia. These include the Alzheimer's Disease Assessment Scale-Cognitive (ADAS-Cog), Mini-Mental State Examination (MMSE), General Practitioner Assessment of Cognition (GPCOG), Montreal Cognitive Assessment (MoCA), Self-Administered Gerocognitive Exam (SAGE), Neuropsychological evaluation, and Short Test of Mental Status. Each of these tests offers unique insights into the cognitive abilities of an individual and can be instrumental in the early detection and management of dementia. By understanding these tests, you can better navigate the path of dementia care and ensure your loved one receives the best possible support.
Read MoreUnderstanding Memory and Cognitive Testing for DementiaManaging Terminal Restlessness
Losing a loved one is an incredibly challenging experience, and witnessing changes in their behavior and well-being can be distressing. As a hospice nurse, I've supported many families and caregivers through this grim time. One common symptom that may arise towards the end of life is restlessness. In this article, I will explain the different types of restlessness and offer guidance on how to manage them. Understanding these distinctions can provide valuable insights into your loved one's condition and help you navigate the final stages of their life with compassion and care.
Read MoreManaging Terminal RestlessnessDocumenting Observational Signs of Discomfort: A Guide for Hospice Nurses and Families
As a hospice nurse, I understand the importance of documenting observational signs of discomfort in terminally ill patients. This guide covers recognizing physical and behavioral cues indicating discomfort, even if patients don't express it. It also highlights the benefits of journaling for families and nurses, with tips for effective documentation to enhance patient comfort and care.
Read MoreDocumenting Observational Signs of Discomfort: A Guide for Hospice Nurses and FamiliesUnderstanding Parkinson’s Disease: A Guide for Families
If you have a loved one diagnosed with Parkinson's disease, you may have many questions and concerns about what to expect and how to provide the best care possible. As an experienced hospice nurse with extensive experience in managing terminal illnesses, I am here to guide you through the journey of Parkinson's disease and offer compassionate support. In this article, we will explore Parkinson's disease, the changes your loved one may experience over time, and practical tips to care for them from the onset to the end-of-life phase.
Read MoreUnderstanding Parkinson’s Disease: A Guide for FamiliesRestoring Taste After Radiation Therapy to the Face and Neck
Radiation therapy is a common treatment for head and neck cancers, but it can lead to the loss of taste, also known as dysgeusia, in some patients. This can be a distressing side effect, but there are steps that patients and caregivers can take to help restore the patient's sense of taste as quickly as possible, with minimal risk. While there is no guaranteed way to restore taste, these tips and strategies may help patients regain some of their enjoyment of food and drink.
Read MoreRestoring Taste After Radiation Therapy to the Face and NeckThe Death Rattle
Witnessing a loved one nearing the end of life can be challenging and emotional for a caregiver. One symptom you may encounter during this time is the death rattle. Understanding what the death rattle is, how to recognize it, and how to manage its symptoms can help you provide comfort and support to your loved one in their final days. This guide will explore the death rattle, its significance, and practical tips for managing it.
Read MoreThe Death RattleUnderstanding the Role of a Hospice Volunteer Coordinator
Hospice volunteer coordinators ensure hospice patients receive the compassionate care and support they need during their end-of-life journey. In this article, we will explore the responsibilities of a hospice volunteer coordinator, address common misconceptions about hospice volunteers, and share insights from Hope Eberly, Volunteer Coordinator for Grane Hospice.
Read MoreUnderstanding the Role of a Hospice Volunteer CoordinatorMottling of Skin Near Death
As a caregiver or family member, it can be challenging to witness the changes that occur as a loved one approaches the end of their life. One such change that may occur is mottled skin, also known as livedo reticularis. Understanding what mottled skin is and its significance in the dying process can help you provide the best care and support to your loved one during this time.
Read MoreMottling of Skin Near DeathMinimizing Dementia Progression in Loved Ones: Beyond Medications
Dementia is a progressive disease that affects memory, thinking, and behavior. While there is no cure for dementia, there are ways to minimize its progression and improve the quality of life for those living with the disease. Here are some activities to do, activities to avoid, dietary changes to make, and activities to perform to minimize the progression of dementia.
Read MoreMinimizing Dementia Progression in Loved Ones: Beyond MedicationsStatins Increase the Risk of Dementia or Worsening Dementia
Pharmaceutical advertisements often highlight the benefits of a particular drug, including its ability to reduce the risk of various health conditions. However, the actual risk reduction these drugs provide may differ from what is portrayed in the advertisements. It is the opinion of the author that if cardiologists and other providers told their patients the absolute risk reduction of statins is 0.8% for all-cause mortality, 1.3% for myocardial infarction and 0.4% for stroke and the side effects of going on a statin include dementia, worsening dementia, confusion, muscle problems, such as aches, pains, weakness, muscle breakdown, falls, nausea, constipation, diarrhea, and increase the risk of type 2 diabetes, would you or anyone else ever agree to take a statin?
Read MoreStatins Increase the Risk of Dementia or Worsening DementiaUnderstanding Laryngeal Cancer: What to Expect and How to Care
Laryngeal cancer is a complex diagnosis for both patients and families. This article aims to provide guidance and support for families new to caring for a loved one with laryngeal cancer. We will discuss what to expect throughout the disease, the changes you may notice in your loved one, and how to provide optimal care from the initial diagnosis to the end.
Read MoreUnderstanding Laryngeal Cancer: What to Expect and How to CareHow to Use the Pain Assessment in Advanced Dementia Scale (PAINAD) to Determine Discomfort in Your Loved One with Dementia
If you have a loved one with dementia, it can be difficult to know if they are in pain or discomfort. The Pain Assessment in Advanced Dementia Scale (PAINAD) is a tool that can help you determine if your loved one is uncomfortable. The Pain Assessment in Advanced Dementia Scale (PAINAD) is different from other pain assessment tools for people with dementia in several ways:
Read MoreHow to Use the Pain Assessment in Advanced Dementia Scale (PAINAD) to Determine Discomfort in Your Loved One with Dementia