Introduction

Losing a loved one to a terminal illness is one of the most painful and difficult experiences anyone can go through. It is natural to want to do everything possible to prolong their life and ease their suffering. However, sometimes, we may hold on to false beliefs that can interfere with our ability to cope with the reality of the situation.

One of these beliefs is the myth that the medications a terminally ill loved one was taking before being terminally ill somehow kept them alive and will continue to keep them alive. This myth can stem from a misunderstanding of how medications work, a denial of the severity of the illness, or a hope for a miracle cure.

However, this myth can negatively affect the patient and their family members. For example, it can lead to:

  • Overmedicating the patient can cause more harm than good, such as increasing their pain, discomfort, or side effects.
  • Refusing to accept palliative care can provide comfort and quality of life for the patient and their family members.
  • Delaying or avoiding important conversations, such as discussing the patient’s wishes, preferences, and goals of care.
  • Feeling guilty, angry, or resentful towards the patient, the health care providers, or oneself for being unable to save the patient or making difficult decisions.

The purpose of this article is to help you understand the myth of medications and terminal illness and how to cope with the reality of losing a loved one. We will explain the facts about medications and terminal illness, how to communicate effectively with the patient and the health care team, and how to find support and resources for yourself and your family. We hope this article will help you make informed and compassionate choices for your loved one and yourself.

Causes and Consequences of the Myth

Why do some people believe that the medications a terminally ill loved one was taking before being terminally ill somehow kept them alive and will continue to keep them alive? Many possible psychological and social factors contribute to the formation and persistence of this myth, such as:

  • Denial: Denial is a common coping mechanism that helps people avoid or minimize the painful reality of a terminal illness. Some people may deny the seriousness of the condition, the prognosis, or the need for palliative care. They may cling to the hope that the medications will cure or reverse the illness or that a miracle will happen.
  • Hope: Hope is a vital source of strength and resilience for people facing a terminal illness. However, sometimes, hope can be unrealistic or misplaced, leading to false expectations or beliefs. Some people may hope that the medications will prolong the life of their loved one beyond what is medically possible or that they will prevent the natural progression of the illness.
  • Guilt: Guilt is a common emotion people experience when they face losing a loved one. Some people may feel guilty for being unable to save their loved one, making difficult decisions, or having negative feelings. They may believe that the medications are the only way to show their love and care or that stopping or reducing them would be equivalent to giving up or hastening death.
  • Attachment is the emotional bond that people form with their loved ones. Some people may have a strong attachment to their loved ones, making it hard to let go or accept the inevitable. They may believe that the medications are keeping their loved one alive or that they are a symbol of their connection. They may fear losing their loved one or being alone without them.

These factors can make it difficult for people to accept the truth about the medications and the terminal illness and to make informed and compassionate choices for their loved ones. However, believing in this myth can have negative impacts on the quality of life and care of terminally ill patients, such as:

  • Unnecessary suffering: Overmedicating the patient can cause more harm than good, such as increasing their pain, discomfort, or side effects. Some medications may also interact with each other or harm the illness. For example, some antidepressants may worsen fatigue or nausea in patients with cancer. Some medications may also contribute to depression, which is a severe mental condition that can affect the patient’s well-being.
  • Reduced comfort: Refusing palliative care can deprive the patient of comfort and quality of life. Palliative care is a specialized form of care that focuses on relieving the symptoms and stress of a severe illness and improving the physical, emotional, and spiritual well-being of the patient and their family. Palliative care can help the patient manage their pain and other symptoms, communicate their wishes and preferences, and find meaning and peace in their final days.
  • Delayed acceptance: Delaying or avoiding important conversations can prevent the patient and their family from achieving a sense of closure and acceptance. Talking about the patient’s goals of care, fears and hopes, regrets and gratitude, and beliefs and values can help them prepare for the end of life and cope with grief and loss. It can also help the family respect the patient’s autonomy and dignity and honor their legacy.

Therefore, it is important to understand the myth of medications and terminal illness and how to cope with the reality of losing a loved one. In the next section, we will provide tips on communicating effectively with the patient and the healthcare team and finding support and resources for yourself and your family.

Strategies to Overcome the Myth

If you or your loved one are struggling with the myth of medications and terminal illness, you may feel confused, scared, or guilty. You may wonder if you are doing the right thing or if there is anything else you can do. You may also feel isolated or misunderstood by others who do not share your beliefs. However, you are not alone; there are ways to cope with this challenging situation. Here are some practical and compassionate tips on recognizing and challenging the myth and finding support and comfort.

  • Seek professional guidance. Talk to your doctor, nurse, or pharmacist if you have questions or doubts about the medications or the illness. They can explain the facts about the medicines and their effects, the illness and its prognosis, and the options for palliative care. They can also help you weigh the benefits and risks of continuing, stopping, or reducing the medications and respect your preferences and choices. If you need more information or clarification, do not hesitate to ask. You have the right to know and understand your situation.
  • Educate yourself. Learning more about the illness and the medications can help you cope with the uncertainty and fear that may come with a terminal diagnosis. You can find reliable and up-to-date information from reputable sources, such as the NHS, Hospicare, or Choosing Therapy. You can also read books, articles, or blogs written by people who have gone through a similar experience or watch videos or podcasts that share their stories. However, be careful not to overwhelm yourself with too much information or information that is not relevant or accurate. Talk to your healthcare team or a trusted person if you feel confused or distressed by what you read or hear.
  • Communicate openly and honestly. Talking about your feelings and thoughts can help you cope with the emotional impact of the myth and the terminal illness. You can share your fears, hopes, regrets, and gratitude with your loved one, family, friends, or anyone you trust. You can also listen to their feelings and thoughts and try to understand their perspective. You may have different beliefs or opinions about the medications or the illness, which is okay. You do not have to agree on everything but can respect each other’s views and feelings. You can also talk about your wishes and preferences for the end of life, such as where you want to die, who you want to be with, what kind of care you want, and what kind of legacy you want to leave. You can also write your wishes in an advance care plan and share them with your healthcare team and family.
  • Find support and resources. Coping with a terminal illness can be stressful and exhausting, both physically and mentally. You may need help and support from others who can understand what you are going through and who can offer you comfort and guidance. You can join a support group, either online or in person, where you can meet and talk to other people who have a terminal illness or who are caring for someone who does. You can also seek counseling, individually or as a family, to express your feelings and thoughts in a safe and confidential space. You can also access spiritual care, if necessary to you, to explore your beliefs and values and find meaning and peace in your situation. You can ask your doctor, nurse, or social worker to refer you to these services or search for them online.
  • Respect the patient’s wishes and honor their dignity. One of the most important things you can do for your loved one who has a terminal illness is to respect their wishes and honor their dignity. This means you acknowledge and support their choices and preferences, even if they differ from yours. It also means that you treat them with kindness, compassion, and respect and help them maintain their comfort, quality of life, and sense of self. You can do this by listening to them, spending time with them, doing things they enjoy, making them laugh, holding their hand, or simply being there for them. You can also help them say goodbye to their loved ones and to celebrate their life and achievements. By doing this, you can show them that you love them and that they matter to you.

Conclusion

In this article, we have discussed the myth of medications and terminal illness and how to cope with the reality of losing a loved one. We have explained the common myth that the medications a terminally ill loved one was taking before being terminally ill somehow kept them alive and will continue to keep them alive. We have also discussed this myth’s possible causes and consequences: denial, hope, guilt, attachment, unnecessary suffering, reduced comfort, and delayed acceptance. Finally, we have provided practical and compassionate tips on overcoming this myth, such as seeking professional guidance, educating oneself, communicating openly and honestly, finding support and resources, and respecting the patient’s wishes and dignity.

The key message and take-home lesson for the readers is that the myth of medications and terminal illness can interfere with their ability to cope with the loss of a loved one and to make informed and compassionate choices for their loved one and themselves. By recognizing and challenging this myth, they can improve the quality of life and care of their loved ones and find comfort and peace in their situation.

We hope that this article has helped you understand the myth of medications and terminal illness and how to cope with the reality of losing a loved one. We know this is a challenging and painful time for you and your family, and we want you to know that you are not alone. Some people care about you and who can help you through this journey. Remember that your loved one is still with you, in your heart and memories, and they will always love you.

Resources

Psychological Issues in End-of-Life Care (PDF)

Coping with Terminal Illness

The role of psychology in palliative care

Coping with a terminal illness

17 Tips for Coping With a Terminal Illness

Coping with Emotions as You Near the End of Life

Aggressive Medical Care Remains Common at Life’s End

On Grief and Grieving: Finding the Meaning of Grief Through the Five Stages of Loss

Finding Meaning: The Sixth Stage of Grief

It’s OK That You’re Not OK: Meeting Grief and Loss in a Culture That Doesn’t Understand

Need Help Dealing with Grief? GriefShare Grief & Loss Support Groups Are Here for You

Children’s Grief Resources

For Ages 4-6

For Ages 6-8

For Ages 8-10

For Ages 11-13

  • All the Blues in the Sky by Renée Watson – About a 13-year-old whose best friend dies on her birthday, exploring grief through counseling group experiences.
  • The Truth as Told by Mason Buttle by Leslie Connor – Chronicles a boy dealing with a friend’s death, learning disability, and community judgment.
  • The Year of the Rat by Clare Furniss – A 15-year-old coping with her mother’s death during childbirth and caring for the baby sister.
  • What On Earth Do You Do When Someone Dies? by Trevor Romain – Accessible for ages 8 to young teens, addressing common questions about death.

For Ages 13-18

Specialized Grief Resources

Young Adult Literature Exploring Grief:

  • Clap When You Land by Elizabeth Acevedo – Two sisters united by their father’s death and his double life.
  • The Grief Keeper by Alexandra Villasante – Speculative fiction addressing grief, trauma, and immigration.
  • Long Way Down by Jason Reynolds – A teen coping with his brother’s shooting death.
  • King and the Dragonflies by Kacen Callender – National Book Award winner about family grief.

Helpful Online Resources

  • The Dougy Center offers extensive free resources, including activity sheets, tip sheets, and guidance for children and families. They provide age-appropriate materials and have partnered with Sesame Street on grief resources.
  • Winston’s Wish provides comprehensive bereavement support for children up to age 25, including online chat, phone support, and downloadable resources. It also offers specialized guidance for different types of loss.
  • Sesame Street Communities: Helping Kids Grieve features interactive videos with Elmo and other characters, activities for expressing feelings, and guidance for families. All resources are free and available in multiple languages.
  • National Alliance for Children’s Grief (NACG) provides educational toolkits, connects families to local support services, and offers professional development for those working with grieving children.
  • GriefShare helps locate local grief support groups for families and provides daily email encouragement for those processing loss.

Enhanced Online Resources for Teens

Specialized Teen Platforms

  • Talk GriefWinston’s Wish operates this dedicated online space for teenagers and young adults aged 13-25. It features peer stories and professional support.
  • Teenage Grief Sucks – A teen-run website opening conversations about grief where teens can read candid stories and share their own experiences.
  • Actively Moving Forward – A national network specifically created for grieving young adults, addressing the unique challenges of this age group.
  • The Dinner Party – Young adults in nearly 100 cities worldwide meet for dinner, creating community for emerging adults who’ve experienced loss.

Comprehensive Teen Support Centers

  • The Dougy Center Teen Resources provide age-specific materials including tip sheets that acknowledge “grief usually does what it wants” and doesn’t follow rules or schedules. They emphasize that there’s no right or wrong way to grieve.
  • Hospice of the Valley Teen Resources offers specialized materials addressing how teens grieve differently than adults, sudden versus expected death, and losing siblings or friends.
  • Children’s Room Teen Program provides peer support groups and activities specifically for teens to connect around shared interests while processing grief.

Interactive Support Options

  • Winston’s Wish offers immediate support through live chat, helpline, and text services – no waiting lists required. They also provide one-to-one sessions with bereavement specialists for teens 13 and older.
  • HEART Play for Young Adults connects late high school and college-aged individuals, providing space to discuss challenges of graduation, leaving home after loss, and meeting new people.

Educational Resources for Teens and Families

  • The JED Foundation provides mental health resources showing teens how they can support one another and overcome challenges during the transition to adulthood.
  • Eluna Network offers grief resources organized by specific age ranges, including detailed developmental information and support strategies for both middle school and high school students.
  • National Alliance for Children’s Grief provides educational toolkits and connects families to local services, with materials specifically designed for adolescent grief.

Eldercare Locator: a nationwide service that connects older Americans and their caregivers with trustworthy local support resources

CaringInfo – Caregiver support and much more!

Surviving Caregiving with Dignity, Love, and Kindness

Caregivers.com | Simplifying the Search for In-Home Care

📚 This site uses Amazon Associate links, which means I earn a small commission when you purchase books or products through these links—at no extra cost to you. These earnings help me keep this website running and free from advertisements, so I can continue providing helpful articles and resources at no charge.

💝 If you don’t see anything you need today but still want to support this work, you can buy me a cup of coffee or tea. Every bit of support helps me continue writing and sharing resources for families during difficult times. 💙

Caregiver Support Book Series

My Aging Parent Needs Help!: 7-Step Guide to Caregiving with No Regrets, More Compassion, and Going from Overwhelmed to Organized [Includes Tips for Caregiver Burnout]

Take Back Your Life: A Caregiver’s Guide to Finding Freedom in the Midst of Overwhelm

The Conscious Caregiver: A Mindful Approach to Caring for Your Loved One Without Losing Yourself

Dear Caregiver, It’s Your Life Too: 71 Self-Care Tips To Manage Stress, Avoid Burnout, And Find Joy Again While Caring For A Loved One

Everything Happens for a Reason: And Other Lies I’ve Loved

The Art of Dying

Final Gifts: Understanding the Special Awareness, Needs, and Communications of the Dying

Providing Comfort During the Last Days of Life with Barbara Karnes RN (YouTube Video)

Preparing the patient, family, and caregivers for a “Good Death.”

Velocity of Changes in Condition as an Indicator of Approaching Death (often helpful to answer how soon? or when?)

The Dying Process and the End of Life

The Last Hours of Life

Gone from My Sight: The Dying Experience

The Eleventh Hour: A Caring Guideline for the Hours to Minutes Before Death

By Your Side, A Guide for Caring for the Dying at Home

Top 30 FAQs About Hospice: Everything You Need to Know

Understanding Hospice Care: Is it Too Early to Start Hospice?

What’s the process of getting your loved one on hospice service?

Picking a hospice agency to provide hospice services

National Hospice Locator and Medicare Hospice Compare

Oh hi there 👋 It’s nice to meet you.

Sign up to receive updates on new articles to your inbox.

The emails we will send you only deal with educational articles, not requests to buy a single thing! Read our privacy policy for more information.

This field is required.
Share your love

Newsletter Updates

Enter your email address below and subscribe to our newsletter