Empowering caregivers, families, and nurses in end-of-life care
Author: Peter Abraham, BSN, RN
Peter Abraham is a seasoned nurse committed to supporting nurses, caregivers, families, and patients in their learning, growth, and well-being journey. His extensive nursing career includes practical experience as a cardiac telemetry nurse in a dynamic cardiology unit at a Magnet-awarded teaching hospital. Additionally, Peter has served as a second-shift RN supervisor, managing an entire building in a Skilled Nursing Facility/Long-Term Care (SNF/LTC) setting with 151 residents. Notably, during the initial wave of COVID-19, the facility achieved an impressive near-100% recovery rate before the completion of Operation Warp Speed.
Peter's nursing career also extends to rural home hospice care. As a visiting hospice registered nurse case manager, he provides compassionate care to patients in various settings, including private homes, personal care homes, assisted living facilities, skilled nursing facilities, and hospitals. His dedication to compassionate care led to the establishment of the Peter Abraham Wound Care Scholarship, which offers education in wound care. This scholarship, associated with the theme of "Wound Care: Enhancing Healthcare for the Aging Population," underscores Peter's commitment to improving care for those in need.
If you have a loved one with dementia, it can be difficult to know if they are in pain or discomfort. The Pain Assessment in Advanced Dementia Scale (PAINAD) is a tool that can help you determine if your loved one is uncomfortable. The Pain Assessment in Advanced Dementia Scale (PAINAD) is different from other pain assessment tools for people with dementia in several ways:
When cancer spreads from its original site to other parts of the body, it's known as metastatic cancer. This article aims to provide information about cancer metastasis, the common areas of metastasis based on the origin of the cancer, observable signs and symptoms, and how families can support their loved ones as the cancer progresses.
Receiving a terminal cancer diagnosis for a loved one can be overwhelming and emotional. I understand your challenges in providing care and support during this difficult journey. This educational article aims to guide families on what to expect throughout the disease, what changes they might see in their loved one, and how to best care for them from onset until the end.
Proper documentation is crucial for hospice nurses to ensure Medicare compliance and maintain the patient's eligibility for services. Auditors, who may not have a healthcare background, review these documents to determine if the patient's condition is terminal. To avoid having the patient removed from service due to improper documentation, hospice nurses should be mindful of the words and phrases they use in their nursing narratives and progress notes. This article will guide what to avoid and why it is essential to paint a picture of a terminally ill patient.
Heart failure is a complex medical condition that can impact the quality of life of patients, especially those in hospice care. As a hospice nurse, assessing the heart failure stage is crucial to providing appropriate care accurately. This article will explore the New York Heart Failure Classification System, its stages, and how to assess patients for their stages. Additionally, we will emphasize the importance of documentation in compliance with Medicare guidelines for terminally ill patients with heart failure.
Deciding on end-of-life care for a loved one is challenging and emotional. One major decision to make is whether to opt for home hospice or hospice care at a facility. Both options have advantages and drawbacks, and understanding the pros and cons can help families make an informed choice. Here, we'll explore the pros and cons of each option and provide key questions that families should ask themselves to aid in their decision-making process.
As an experienced hospice registered nurse case manager specializing in compassionate end-of-life care, I've had the privilege of working closely with terminally ill patients, including those battling dementia. Through years of dedicated service, I've observed a significant difference in the well-being and quality of life of dementia patients in family home settings versus facility-based care. In this article, we'll explore why patients with dementia often experience better outcomes in the comfort of a family home.
This position involves being the first point of contact for families, patients, and facilities, making a lasting impression by offering both compassion and confidence in explaining hospice services. In this discussion, we will delve into the various aspects of the role of the Hospice Liaison, bringing insight from forever Christmas-loving Kathy Naccarato, including its dynamic nature, your dedication to dispelling misconceptions, and the importance of building relationships within the healthcare community.
Lewy Body Dementia (LBD) is a complex and challenging condition that affects millions of individuals worldwide. As a hospice nurse with years of experience, I understand the importance of providing families with clear and compassionate information about what to expect when a loved one is diagnosed with LBD. This article will discuss what LBD is, its common symptoms and progression, and practical tips for providing care and support throughout the journey, from onset until the end of life.
Explore the journey of functional decline in the natural dying process. This article provides insight for caregivers and families, emphasizing the importance of documenting changes to enhance care and decision-making in life’s final chapter.
Medication reconciliation plays a pivotal role in hospice care, ensuring terminally ill patients receive safe medication regimens. This process involves maintaining an accurate medication list to prevent adverse drug events. It's essential at various stages, including admission, recertification, and changes in condition. Healthcare professionals should be familiar with tools like the Beers Criteria and STOPP/START criteria to identify potentially inappropriate medications and prescribing omissions in older adults.
When a loved one is terminally ill, it can be a perplexing and emotional journey. Understanding the root cause of their declining health becomes paramount. It's a complex puzzle where family members often grapple with questions: Are the symptoms a result of medications prescribed, or are they intrinsic to the terminal disease? This article delves into the critical distinctions between medication side effects and the natural progression of terminal illnesses, offering insights to empower families and caregivers in making informed decisions about their loved one's care.
Serotonin syndrome is a potentially life-threatening condition caused by an excess of serotonin in the body. Detecting this condition early is crucial, but it can be particularly challenging when dealing with dementia patients due to communication barriers and the complexity of their symptoms. In this article, we will present three case studies that highlight the early detection and successful management of serotonin syndrome in patients with different types of dementia: Alzheimer's disease, vascular dementia, and Lewy Body Dementia.
Hospice nurses assess the status of the patient's journey towards the end of life every nursing visit. Situations where a reversible condition can drastically impact the patient and the hospice assessment can occur. If it is not caught, it is potentially mistreated, leading to increased discomfort and a faster death, often involving increased suffering. One of the common clues that someone is getting closer to dying is increased agitation and restlessness.
Are you aware of Serotonin Syndrome?
Discover key indicators for end-of-life care in hospice. This guide highlights ‘trigger words’ that signal a patient’s final days, aiding nurses and caregivers in providing compassionate support during the most critical moments.
If your loved one has been diagnosed with Vascular Dementia, it is natural to have questions and concerns about what lies ahead. This educational article aims to provide you with an overview of what to expect over the course of the disease, the changes you might see in your loved one, and how to best care for them from onset until the end of life.
Hospice care is often misunderstood and shrouded in myths that can prevent individuals and families from accessing the compassionate support they need during a challenging time. This article will address common misconceptions about hospice care and provide you with the facts. We aim to empower you with accurate information to make informed decisions when considering hospice for yourself or a loved one.
Dementia is a condition that affects millions of people worldwide, and it can cause a range of symptoms, including pain and discomfort. Unfortunately, pain is often under-detected and undertreated in people with dementia, leading to significant suffering and a reduced quality of life. In this article, we will explore the prevalence of pain among dementia patients, the impact of unmanaged pain on their quality of life, behavioral changes that may indicate pain, and the use of the PAINAD pain scale as a tool for assessing and managing pain in dementia patients.
Caring for a loved one with dementia can be a rewarding experience, but it can also be physically, emotionally, and mentally exhausting. Family caregivers often neglect their own well-being while focusing on the needs of their loved ones, leading to burnout. Caregiver burnout is a state of physical, emotional, and mental exhaustion that can happen when caregivers don't get the help they need or try to do more than they are able to do. In this article, we will discuss how family caregivers of a loved one with dementia can avoid burnout and recover if they are already experiencing burnout.
Caring for a loved one with a history of diverticulitis requires a combination of preventive measures, early detection of warning signs, and understanding the common signs and symptoms of this condition. Your role as a caregiver is crucial in providing support and assistance to ensure their well-being. In this comprehensive guide, we will explore essential aspects of caring for someone with diverticulitis, including prevention, early warning signs, and treatment options.
In the realm of hospice care, where empathy and compassion are paramount, a remarkable approach called Validation Therapy has emerged as a beacon of hope and comfort for individuals facing dementia and cognitive disorders in their final journey. As an experienced hospice registered nurse case manager, I've witnessed the transformative impact of Validation Therapy on patients, allowing them to find solace, regain their self-worth, and experience a sense of dignity during their end-of-life phase.
I understand how challenging it can be for terminally ill patients to cope with their fear of impending death. It is crucial for both healthcare providers and family members to take these feelings seriously and respond with compassion and understanding. In this article, we will explore the importance of acknowledging a patient's fear of impending doom and discuss actions that families can take to provide peace and comfort during this grim time.
Caring for individuals with dementia can be both challenging and rewarding. One approach that has gained recognition for promoting meaningful relationships with dementia patients is Validation Therapy, developed by Naomi Feil. This article will explore how Validation Therapy works, why it does not involve telling a single lie, and why honesty is crucial when dealing with dementia patients.
Dementia is a condition that affects cognitive abilities such as thinking, remembering, and reasoning. It is crucial to recognize the signs and symptoms of dementia early to provide proper support. This article will help you understand the common signs and symptoms of dementia and steps you can take to address them.
