Category: Caregiving Tips
Articles for caregivers of terminally ill patients including how to manage challenging situations.
Understanding Self-Soothing Sounds During the End-of-Life
The journey towards the end of life can be a challenging and emotional time, both for the individual facing the end of their life and for their caregivers and family members. One aspect of this journey that may be unfamiliar to many is the presence of self-soothing sounds made by the patient during the transition and actively dying phase. These sounds can be puzzling and sometimes unsettling for caregivers and family members who have never witnessed them. This article will explore self-soothing sounds, why they occur, and how caregivers and family members can distinguish between self-soothing sounds and signs of discomfort.
Navigating the Complex World of Dementia and Seizures
This article delves into the intricate relationship between dementia and seizures, offering insights on identification, safety protocols, and advocacy for caregivers.
Understanding UTIs in Dementia Patients: A Guide for Caregivers
This comprehensive guide helps caregivers understand why urinary tract infections (UTIs) are prevalent in dementia patients. It provides practical advice on prevention, early detection, and effective treatment strategies. Empower yourself with the knowledge to provide the best care for your loved ones.
Managing Aspiration Risks in Hospice Care: A Guide for Families
This article is crafted with heartfelt understanding and care, recognizing the challenges you face as caregivers and family members of terminally ill loved ones. Our goal is to empower you with knowledge and practical advice to manage the risk of aspiration pneumonia, a common yet often preventable complication in hospice care.
Navigating Dementia Care Options: A Family’s Guide to Selecting the Right Facility
Deciding on a dementia care facility is crucial. This guide compares personal care homes, assisted living, memory care units, and nursing facilities, detailing Medicaid eligibility, pros and cons, and essential questions to ensure the best care for your family member.
Ensuring Quality Care: The Vital Role of Regular Care Plan Meetings
Uncover the importance of regular care plan meetings at healthcare facilities. This guide details participants, goals, benefits, and risks of non-participation.
Post-Admission Visit in Hospice Care: What to Expect and Questions to Ask
If you or someone you love has a serious illness that cannot be cured, you may have heard of hospice care. Hospice care is a special kind that focuses on making the patient comfortable and peaceful in their final days. Hospice care also supports the family and caregivers emotionally and spiritually.
When a patient joins hospice care, they will have a special meeting with a hospice nurse. This meeting is called the post-admission visit. It is an especially important visit because it will help the patient and the family get to know the hospice team and learn more about the care they will receive.
This article will explain what to expect and what to ask during the post-admission visit. We will also provide tips and resources to help you and your loved one make the most of this time. We hope this article will help you feel more prepared and confident about the hospice journey.
Understanding Creutzfeldt-Jakob Disease (CJD) and How to Care for Your Loved One
Facing Creutzfeldt-Jakob Disease (CJD) can be overwhelming, but with the right information and compassionate care, you can navigate this journey with your loved one. This guide is designed to help families new to CJD understand what to expect, recognize changes in their loved one, and provide the best care from onset
Demonstrating Compassion
Discover practical ways to show compassion in hospice care. Learn how small gestures like active listening, gentle touch, and respecting personal space can make a significant difference. Explore the importance of empathy, cultural sensitivity, and self-care for caregivers in providing compassionate end-of-life support.
Navigating Dementia: A Guide to Supportive Supplements
Discover how Lion’s Mane, Magnesium Glycinate, Vitamins D3, K2, B1, Folate, C, and MTC Oil can play a role in dementia care. This article delves into the latest research and expert insights on natural supplements that support cognitive function and overall brain health.
Natural Remedies for Dementia Anxiety: Ashwagandha and CBD
Explore the use of ashwagandha and CBD to ease anxiety in dementia patients. Learn about dosages, safety precautions, and real-life stories.
Understanding and Managing Sundowning in Dementia: Ensuring Safety for Your Loved One
Sundowning, or "late-day confusion," is a challenging experience for individuals with dementia and their caregivers. This phenomenon, occurring in the late afternoon or evening, brings about increased confusion, anxiety, and agitation. Caregivers need to comprehend sundowning and offer compassionate care to ensure the well-being of their loved ones. This article delves into effective pharmacological and non-pharmacological strategies to manage sundowning and create a safe environment.
Caring for Elderly Parents with Dementia Who Refuse Help
Navigating the challenges of caring for an elderly parent with dementia can be tough, especially when they resist help. This guide offers practical advice and compassionate strategies to support your loved one while respecting their autonomy and dignity.
Understanding Dementia Medication Side Effects: A Guide for Families
Discover the potential side effects of dementia medications and how to support your loved one. Stay informed!
The Importance of Routines and Consistency for Patients with Dementia
Maintaining routines and consistency can significantly improve the overall well-being and quality of life of a loved one with dementia. As a caregiver, understanding the value of routines and how they can positively impact your loved one's journey through dementia is crucial. In this article, we'll explore why routines matter, how to establish them, and their benefits to patients and caregivers.
Encouraging Dementia Patients to Take a Bath or Shower: 3 Gentle Methods
Discover gentle methods to encourage dementia patients to bathe. Learn how to create a positive bathing experience, use distraction techniques, and maintain a consistent routine. These compassionate approaches help caregivers navigate hygiene challenges while preserving dignity and reducing stress for both patient and caregiver.
Doctors Ignoring Family Concerns in Dementia Care
Welcome to our discussion on a topic close to many hearts: the care of our loved ones with dementia. When a family member is diagnosed with dementia, it feels like a part of them slowly fades away. But as they lose parts of themselves, your role in their life becomes even more crucial. This article isn’t just words on a page; it’s a beacon of hope and understanding, shining a light on why your voice, as a family member, is vital in the care of your loved one.
Understanding Repetitive Questions of Dementia Patients
When caring for a loved one with dementia, it's important to approach their needs with empathy and understanding. Dementia is a progressive condition that affects memory, thinking, and communication. As a caregiver or family member, it's crucial to adapt your communication style and strategies to best support your loved one. This article will guide you through the stages of dementia, address common symptoms like anxiety and agitation, provide techniques to reduce caregiver burnout, create a calm environment, and effectively respond to repetitive questions.
Optimizing Hospice Respite Care: A Comprehensive Guide for Families
Caring for a loved one who has a terminal illness can be extremely rewarding but also particularly challenging. You may feel exhausted, overwhelmed, or isolated by the demands of caregiving. You may also feel guilty or anxious about taking a break from your loved one. But you deserve time to rest, recharge, and care for yourself. That is why hospice respite care can be a great option for you and your loved one.
Hospice respite care is a service that allows you to temporarily place your loved one in a facility, such as a hospital, nursing home, or hospice house, where they can receive professional care and support. You can use this time to do whatever you need or want, such as sleeping, working, running errands, visiting friends, or enjoying a hobby. Respite care can last up to five days at a time.
Review of Gone from My Sight by Barbara Karnes, RN
As an experienced hospice nurse with years of experience, I have come across numerous resources that aim to guide families and caregivers through the process of dying. One such resource that stands out is "Gone from my sight: The Dying Experience" by Barbara Karnes, RN. This booklet, often referred to as the "Little Blue Book," has been a staple for hospice providers for over three decades, and for good reason.
Nourishing with Care: Feeding a Terminally Ill Loved One
Discover compassionate approaches to nourishing terminally ill loved ones. Learn about appetite changes, feeding techniques, and the importance of emotional support during meals. This guide offers practical tips for caregivers to ensure comfort and dignity while addressing nutritional needs in end-of-life care.
Managing Diabetic Ketoacidosis and Hyperosmolar Hyperglycemic State at End of Life: A Comfort-Based Approach
As an experienced hospice nurse, I understand that managing diabetic ketoacidosis (DKA) and hyperosmolar hyperglycemic state (HHS) at end of life can be challenging, especially when patients choose to stop taking their diabetic medications or when those medications are no longer an option. In this article, I will provide information on recognizing the signs and symptoms of hyperglycemic crises and outline comfort-based treatment options that align with hospice goals of care.
Traveling While on Hospice: Making the Most of Precious Moments Together
Discover how hospice patients can safely travel and create lasting memories with loved ones. Learn about essential preparations, medical considerations, and tips for a smooth journey. Explore ways to make the most of precious moments together while ensuring comfort and care during travel.
Caring for a Loved One with Dementia: Encouraging Medication Compliance
Caring for a loved one with dementia can be challenging. One common struggle caregivers face is ensuring their loved one takes their medications. Dementia can make understanding and remembering medications difficult. In this guide, we'll explore effective strategies for encouraging your loved ones with dementia to take their medications, considering their unique needs.